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Please join BC Linebacker Mark Herzlich for a celebrity golf tournament on July 10, 2012, at Pine Hills Golf Club.  Proceeds will equally benefit  the Boston College Chapter of Uplifting Athletes (which funds Ewing's sarcoma research in honor of Mark).

The donation per foursome is $2000.  The event will start at 11 am, followed by a dinner, awards ceremony and auction.  Each foursome will be joined by a celebrity guest.  Celebrities Include: Boby Orr, Tedy Bruschi, Curt Schilling, Troy Brown, Ken Hodge, Max Lane...and many more New England celebrities and athletes!

We will be very grateful if you will take part in this charity event by donating an auction item, making a donation for our player “goodie bags,” sponsoring a hole ($500) or buying a foursome.

You may be aware that Mark Herzlich, an extremely promising football player at Boston College, was stricken with a very rare and deadly cancer called Ewings Sarcoma. Boston College formed a chapter of Uplifting Athletes (www.upliftingathletes.org) in order to raise charitable gifts that support Ewings Sarcoma research in Mark’s honor. Now Mark is linebacker for the New York Giants.

Please send your auction donation to  Jayme Parker -- 38 Daedalus Circle,  Scituate, MA  02066.  For more information please contact Jayme Parker at jparker@nesn.com.

Uplifting Athletes is a 501(c)3 tax exempt organization. Gifts are tax-deductible to the extent permitted by law: Federal Tax ID Number is 34-1986485

07/10/2012 11:00 AM - 07:00 PM ET

To register, check the Registration Link

The inaugural Gridiron Gala is a black-tie optional event being held at the State Musuem of Pennsylvania of Harrisburg on Friday, April 20, 2012 in support of Uplifting Athletes.

04/20/2012 07:00 PM - 10:00 PM ET

To register, check the Registration Link

UpliftingAth: RT @scottshirley80: Meet the finalists & VOTE for the @UpliftingAth Rare Disease Champion: an award inspired by @MarkHerzlich. Please RT ...

Mass hysteria rare, but usually seen in girls
Fox News
Now known as conversion disorder, sufferers experience real, but psychologically triggered symptoms. It's rare, but scores or even hundreds of outbreaks have been recorded through the decades around the world. It's a diagnosis that's often reached ...

and more »

All in Your Head?
Patch.com
Area residents share their experiences with little known diseases as a national organization prepares to mark Rare Disease Day this month. By Katie Dahlstrom Sophia Dhuse and her father, Peter Dhuse, in June, walking to fight Cyclic Vomiting Syndrome.

Raise Your Hand to Support People with Rare Diseases
EON: Enhanced Online News (press release)
DEERFIELD, Ill.--(EON: Enhanced Online News)--Today, Lundbeck announced its third annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance on February 29 to increase awareness of rare diseases.

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PRINCETON: Contest to raise funds for boy with rare disease
Packet Online
By Victoria Hurley-Schubert, Staff Writer The family of an eighth grader with a rare genetic disorder is the beneficiary of the 38th Annual Longbeard Contest at the Alchemist & Barrister. Derek DiGregorio, who lives with his family in the township was ...

Mass hysteria rare, but usually seen in girls
Fox News
Now known as conversion disorder, sufferers experience real, but psychologically triggered symptoms. It's rare, but scores or even hundreds of outbreaks have been recorded through the decades around the world. It's a diagnosis that's often reached ...

and more »

GatorCountry.com
David Lerner up for another award
GatorCountry.com
Now he's up for another award, the 2012 Uplifting Athlete Rare Disease Champion Award. He is one of four finalists, and the winner will be determined by online voting, which began on Feb. 1 and will continue until Feb. 26. Lerner was also named to the ...
Florida P David Lerner a finalist for award, voting now openOrlando Sentinel (blog)

all 3 news articles »

Orlando Sentinel (blog)
Florida P David Lerner a finalist for award, voting now open
Orlando Sentinel (blog)
Online voting is now open for the Uplifting Athlete Rare Disease Champion Award, for which Florida punter David Lerner is a finalist. The Gators' redshirt junior was diagnosed with Crohn's disease before the start of fall camp. Lerner received the Dick ...

and more »

Alternating Hemiplegia of Childhood Foundation President Releases Podcast on ...
SBWire (press release)
In the podcast, Wuchich discusses the effects of AHC; how the AHC Foundation is spearheading the push for research through fundraising efforts, including the “1 in a Million” campaign; the significance of Rare Disease Day; and his personal experience ...

Raise Your Hand to Support People with Rare Diseases
MarketWatch (press release)
Today, Lundbeck announced its third annual Raise Your Hand to Fight Rare Diseases campaign in support of Rare Disease Day, a worldwide observance on February 29 to increase awareness of rare diseases. When an individual clicks the Raise Your Hand icon ...

and more »

Times LIVE
Vertex' Newly Approved Cystic Fibrosis Drug Illustrates Hopes and Challenges ...
Bio-IT World
The Kalydeco story invites a more general debate on the future of personalized medicine and the treatment of rare diseases. Francis Collins estimates that 6000 of the 7000 known human diseases worldwide are rare diseases, and that almost 25 million ...
US approves new drug for rare cystic fibrosisTimes LIVE
Vertex receives US FDA approval for Kalydeco to treat underlying cause of ...pharmabiz.com
Drug breakthrough for handful of cystic fibrosis patientsCTV.ca
News On 6
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Local nonprofits launch month-long campaign in support of patients
OC Metro
By Elaine MurphyPublished: February 01, 2012 06:45 AM The RARE Project and the Global Genes Project, both rare disease advocacy organizations based in Dana Point, will launch a month-long campaign in February to raise awareness for patients suffering ...
The RARE List™ - You Must See it to Believe it!DigitalJournal.com (press release)

all 5 news articles »

A 'True Blood' Vampire Grapples With A Descent Into Darkness
Wall Street Journal (blog)
He has a rare genetic disease called Choroideremia. Essentially the proteins that protect his eyes from the sun are missing and the cells that create vision are dying. It begins peripherally and moves inward until total blindness.

Dance Marathon: 14-year-old fights rare disease
UI The Daily Iowan
Last month, Iowa City doctors diagnosed him as having epithelioid angiosarcoma, a rare cancer documented in only eight other patients throughout the world. Jordan is the first pediatric patient. He and his family first noticed a problem last fall when ...

More Than 630 Partners Will Join NORD in Observing Rare Disease Day
Sacramento Bee
By National Organization for Rare Disorder (NORD) WASHINGTON, Jan. 31, 2012 -- Patients Will Share What It's Like to Live With A Rare Disease on February 29 WASHINGTON, Jan. 31, 2012 /PRNewswire-USNewswire/ -- On the ultimate rare day - February 29th ...

UpliftingAth: @ktomas67 @MarkHerzlich Very cool to hear you're wearing your uplifting athletes band! #StrongerEveryday

UpliftingAth: RT @ktomas67: @MarkHerzlich still wear my uplifting athletes band to this day. Do work in #SuperBowl2012 #ALLIN

Fundraising run to benefit Gilbert toddler with rare disorder
Arizona Republic
Run for Broxton will help Broxton but also donate a percentage of the proceeds to the Batten Disease Support and Research Association. "We want to show them that there is an entire community of support behind them, both financial and emotional support ...