About Rare Diseases
There are about 7000 rare diseases identified in the United States. About 80% of rare diseases are genetic in origin and about 50% affect children.
Rare diseases can be chronic, progressive, debilitating, disabling, severe and life-threatening. Information is often scarce and research is usually insufficient.
People affected face challenges such as delays in obtaining a diagnosis, misdiagnosis, psychological burden and lack of support services for the patient and family.
Uplifting Athletes News
Uplifting Athletes Blog
Andy Shay is the Director of External Relations at Uplifting Athletes. After spending 21 years as a sportswriter coveri…
We have hit the halfway mark of the 2015 Uplifting Athletes Rare Disease Champion online voting campaign that launched J…
Each of the six finalists for the Uplifting Athletes Rare Disease Champion Award will be featured here. In order to cast…