About Rare Diseases
There are about 7000 rare diseases identified in the United States. About 80% of rare diseases are genetic in origin and about 50% affect children.
Rare diseases can be chronic, progressive, debilitating, disabling, severe and life-threatening. Information is often scarce and research is usually insufficient.
People affected face challenges such as delays in obtaining a diagnosis, misdiagnosis, psychological burden and lack of support services for the patient and family.
Uplifting Athletes News
Uplifting Athletes Blog
More than a year in the making, the Georgia Tech Chapter held its inaugural Lift For Life in support of the rare disease…
Each spring Uplifting Athletes brings together the student-athlete leaders from our Chapter network across the country f…
Each Uplifting Athletes Lift For Life event put on by one of our Chapters has its own unique touch. The Illinois Chapter…