About Rare Diseases
There are about 7000 rare diseases identified in the United States. About 80% of rare diseases are genetic in origin and about 50% affect children.
Rare diseases can be chronic, progressive, debilitating, disabling, severe and life-threatening. Information is often scarce and research is usually insufficient.
People affected face challenges such as delays in obtaining a diagnosis, misdiagnosis, psychological burden and lack of support services for the patient and family.
Uplifting Athletes News
Uplifting Athletes Blog
Name: Devin O’Connor College: North Carolina State University Height, weight, class, position: 6-3, 236, sophomore, ti…
On Saturday, October 4, the Colgate Chapter of Uplifting Athletes hosted their second annual Ependymoma Awareness Game…
Name: Sal Conaboy College: University of Maryland Height, weight, class, position: 6-3, 295 pounds, senior, center High…