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Friday, March 24, 2017

News from Tulane

Family of Tulane alumnus faces rare disease
News from Tulane
The two daughters of Tulane alumnus Chris Andrews, left, and his wife, Pam, second from right, were diagnosed with a rare, life-threatening illness called Niemann-Pick Type C1. In February, People magazine published a story and 20-minute video about ...

Friday, March 24, 2017

Refinery29

The Amazing Reason This Girl Flew Halfway Across The Country To Meet A Stranger
Refinery29
Hypopara, or hypoparathyroidism, is a rare condition that causes someone's body to produce a low amount of a hormone called parathyroid hormone, according to Hypopara UK. Having too little of this hormone causes insufficient levels of calcium in the ...

Friday, March 24, 2017

Rare Disease Day – A Busy Day for Amicus and Its CEO
Rare Disease Report
To celebrate Rare Disease Day on February 28, 2017, Amicus Therapeutics hosted CabaRare at their Cranbury, N.J. headquarters in which four young people with rare diseases shared their musical talents. Annual Rare Disease Day is an international event ...

Friday, March 24, 2017

MyStatesman.com

2-year-old with rare disease becomes honorary police officer in NJ
MyStatesman.com
A 2-year-old with a rare genetic disease became the youngest police officer in New Jersey, WABC reported. >> Read more trending news. Trent Powers is battling Duchenne muscular dystrophy, and on Wednesday he became an honorary member of the ...
2-year-old with rare disease becomes honorary police officer in NJ ...WSB Radio
2-year-old with Duchenne muscular dystrophy made honorary Spotswood police officerNews 12 New Jersey

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Friday, March 24, 2017

Erytech investigates possible rare disease therapy
The Pharma Letter (registration)
Erytech Pharma (Euronext: ERYP), a French biopharmaceutical company, will collaborate with the Fox Chase Cancer Center in Philadelphia, USA, to develop the company's rare disease candidate erymethionase. Erytech is developing the compound as a ...

Friday, March 24, 2017

ActionNewsJax.com

2-year-old with rare disease becomes honorary police officer in NJ
Hamilton Journal News
A 2-year-old with a rare genetic disease became the youngest police officer in New Jersey, WABC reported. >> Read more trending news. Trent Powers is battling Duchenne muscular dystrophy, and on Wednesday he became an honorary member of the ...
A special thanks to Spotswood police for swearing in Trent PowersNew Jersey 101.5 FM Radio

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Friday, March 24, 2017

MyDaytonDailyNews

2-year-old with rare disease becomes honorary police officer in NJ
MyDaytonDailyNews
A 2-year-old with a rare genetic disease became the youngest police officer in New Jersey, WABC reported. >> Read more trending news. Trent Powers is battling Duchenne muscular dystrophy, and on Wednesday he became an honorary member of the ...
2-year-old with rare disease becomes honorary police officer in NJ ...WSB Radio
2-year-old with Duchenne muscular dystrophy made honorary Spotswood police officerNews 12 New Jersey

all 5 news articles »
Friday, March 24, 2017

DOH aims to make tuberculosis a rare disease by 2022 | Inquirer ...
Inquirer.net
The Department of Health is shifting its anti-tuberculosis campaign to make tuberculosis a rare disease instead of a prevalent illness by 2022. According t.

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Friday, March 24, 2017

'Terrifying and isolating' - living with a rare disease
BBC News
"It's terrifying, isolating - you're having these symptoms and you don't know what tomorrow is going to bring or where it will end up." That is how Carol McCullough describes living with a rare disease and trying to find out what was wrong with her.

Thursday, March 23, 2017

Engadget

Facial recognition will help doctors detect rare genetic disease
Engadget
A group of scientists have used facial recognition for something other than verifying identity or catching crooks on the run. The team from the National Human G...
Facial recognition software help diagnose rare genetic diseaseMedical Xpress
Facial Recognition Software Will Help Identify Rare Genetic Disease ...International Business Times

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