Latest News

Tuesday, August 30, 2016

TWC News

Accessible Home Construction Underway for Young Girl Battling Rare Disease
TWC News
Audrina was born with a rare condition called Maffucci syndrome and Ollier's disease. The illnesses cause her bones to stop growing. Several times per year, Audrina and her parents fly to Philadelphia to have the surgery where doctors break her bones ...

Tuesday, August 30, 2016

Mirror.co.uk

Brave little girl battling rare disease is one of just 20 in world with ...
Mirror.co.uk
A brave little girl is battling a debilitating disease so rare that it has affected just 20 other people in the world. Matilda Hatton, aged seven, from Walsall, has ...
Video: Cute little girl just one of 20 people in the world suffering from ...Yorkshire Evening Post

all 4 news articles »
Monday, August 29, 2016

Patch.com

Morris County Horse Dies Of Rare Disease Affecting Brain
Patch.com
EEEV is a virus that is spread by the bite of an infected mosquito, like many other diseases including West Nile and Zika. According to the CDC, the virus multiplies and survives through a cycle between Culiseta melanura mosquitoes and various avian ...

Monday, August 29, 2016

Walsall youngster one of only 20 to suffer from rare disease
Walsall Advertiser
A CUTE seven-year-old girl from Walsall is one of just 20 people in the WORLD suffering from a disease which is so rare that it took doctors three years to diagnose her. Matilda Hatton suffers from Sensenbrenner Syndrome which causes her to have ...

Monday, August 29, 2016

News24

7-year-old with rare disease shines light on need for bone marrow donors in SA
News24
We speak to 7-year-old Rachel Ancer and her parents, Jean and Jonathan about living with a rare disease. Rachel has been given a working diagnosis of Pure Red Cell Aplasia, meaning her body doesn't produce red blood cells. Rachel is currently having a ...

Sunday, August 28, 2016

CBS News

Putting a face on rare, incurable diseases
CBS News
When children are dying of rare diseases that few people are working to cure, a closer look is required -- which is just what one committed artist is providing. Our Cover Story is reported by Jim Axelrod: His name is Sam Buck. And while his high ...

Saturday, August 27, 2016

NBC Southern California

Man With Rare Disease Gets His Wish to Experience College | NBC ...
NBC Southern California
Some lucky college students will have the opportunity to meet a new student on campus this year—a 21-year-old man with a rare neurological disease, who is ...

and more »
Friday, August 26, 2016

NBC4 Washington

'Phenomenal': 10-Year-Old Md. Boy Recovers From Rare Disease
NBC4 Washington
A Maryland family is celebrating what they describe as a miracle as a 10-year-old boy has regained his ability to walk, talk and eat nearly two years after he was diagnosed with a rare auto-immune disease. Jackson Gilmore's life changed when he ...

Friday, August 26, 2016

WTAE Pittsburgh

McKeesport teen left paralyzed 'overnight' by rare disease | Local ...
WTAE Pittsburgh
While his 8th-grade classmates at Founders Hall Middle School went back to class Wednesday, Noah Torok stayed in his hospital bed.

and more »