Latest News

Wednesday, June 28, 2017

Business Standard

Drugs for cancer, rare diseases to get affordable after GST roll-out
Business Standard
The NPPA notification would mean reduction in prices of drugs to treat HIV, cancer, Crohn's disease, pneumonia and skin-related ailments among others. Prices of some of these drugs have come down by a few hundred rupees. For instance, the price of ...

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Tuesday, June 27, 2017

KXLY Spokane

Mom of son with rare disease says healthcare decision is about more than 'politics'
KXLY Spokane
COEUR D'ALENE, Idaho - At a mature 'almost-ten-years-old,” Brady Schroeder counts Joseph Haydn at the top of his favorite songs to play on the piano. “I like to play this song I practiced for my talent show called the “German Dance,” he said. Another ...
N. Idaho woman worried about healthcare future for her sonKREM.com

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Tuesday, June 27, 2017

Patch.com

Milford Rep. Rose Appointed To Rare Disease Task Force
Patch.com
From the Connecticut General Assembly: State Representative Kim Rose (D-Milford) has been appointed to serve on the Connecticut General Assembly's Rare Disease Task Force by Public Health Committee Chairman State Representative Jonathan ...

Tuesday, June 27, 2017

Forbes

Rare Diseases: Biotech's High Risk, Highest Reward Sub-Sector
Forbes
In How To Maximize Biotech Returns Under Donald Trump, Todd Hagopian highlighted Rare Diseases, a sub-sector that includes companies developing novel drugs for diseases that affect small patient populations. The often incredibly high price tags for ...

Tuesday, June 27, 2017

The Evening Sun

Battling rare disease, East Berlin boy kept smiling - The Evening Sun
The Evening Sun
Tyson Balek, of East Berlin, died on June 22 because of complications from a rare brain disease he battled for almost three years.

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Tuesday, June 27, 2017

BayToday

Rare disease story creates connections
BayToday
Dawn Champagne suffers from a disease called primary biliary cholangitis (PBC), a rare autoimmune liver disease that affects an estimated 11,000 Canadians. Champagne figured she may be the only person in North Bay and possibly Northern Ontario with ...

Tuesday, June 27, 2017

Daily Mail

Hedgehog with 'balloon syndrome' that EXPANDED like a beach ball is deflated after vets 'pop' him to release the GAS ...
Daily Mail
A hedgehog which blew up like a beach ball thanks to a rare syndrome is on the road to recovery after being 'popped'. The tiny hedgehog, which inflated to twice its usual size due to a severe case of 'balloon syndrome', is once again looking sharp ...

Tuesday, June 27, 2017

New York Daily News

Freezing new procedure to clear rare blood disease in the nose for children at Mt. Sinai
New York Daily News
The medication is not suppressing the disease.” Still, the cryotherapy procedures have been spread out long¬er over time, and she's not now on the lung transplant list. The sophomore at Lakeland Regional High School now has to undergo the outpatient ...

Monday, June 26, 2017

WFAA

Story of rare breast cancer that looks like sunburn, saves nurse's life ...
WFAA
"I'm trying so hard to be positive. When I can't sleep or I'm just thinking about it, I just try not to let my mind go there because I'm so afraid I'll start crying and not ...

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Monday, June 26, 2017

KSL.com

Utah startup on the fast track to finding drug therapies for rare ...
KSL.com
A Utah startup has quickly made big strides in drug research. In just three years, Recursion Pharmaceuticals has found a way to put a time-consuming process ...

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