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Friday, October 24, 2014

Chillicothe Gazette

Ohio warns hunters about rare deer disease
SunHerald.com
COLUMBUS, Ohio — State officials are warning hunters about eating animals after a rare disease has made its way into the Ohio deer population. The Columbus Dispatch reports (http://bit.ly/1sgCdpY ) Chronic Wasting Disease was recently identified in a ...
First deer with Chronic Wasting Disease diagnosed in OhioColumbus Dispatch

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Thursday, October 23, 2014

Dallas Morning News

Mikayla Bass, former Coppell volleyball star afflicted with rare disease ...
Dallas Morning News
For Mikayla Bass, Oct. 17 was one of her good days as she battles a rare disease that has no known cure and has robbed her of much more than a college volleyball career. The former two-sport state champion from Coppell High School could get out of bed.

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Thursday, October 23, 2014

FDA.gov (blog)

The more we know about rare diseases, the more likely we are to find safe and ...
FDA.gov (blog)
Janet Woodcock You may be inclined to think that rare diseases affect only a tiny fraction of the more than 320 million people in our country. That's true about a single rare disease. But there are about 7,000 rare diseases. If you add them all ...

Thursday, October 23, 2014

California Boy Raises $800000 to Fight Friend's Rare Disease
NBCNews.com
Lora Pournazarian rarely sleeps through the night. A bundle of nerves, Lora is up every few hours — eyes fixed on the alarm clock, thoughts focused on her 8-year-old son, Jonah. Ten times a day, Lora and her husband, Rabin, feed Jonah a mix of corn ...

Thursday, October 23, 2014

Rare diseases: No reason for lower demands for studies
Phys.Org
The German National Action League for People with Rare Diseases (NAMSE), founded in 2010, has developed a catalogue of policy proposals, which, among other things, includes the development of criteria for the assessment and analysis of studies with ...

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Thursday, October 23, 2014

The Borneo Post

Parents seek public donation to help daughter with rare disease
The Borneo Post
JITRA: Parents of eight-year-old Nor Aina Syazwana Husna in Kampung Tanjong Kapur here are seeking public donation for their bedridden daughter who is suffering from a rare neurological disease. Nor Aina, the fourth of six siblings, was diagnosed with ...
Girl with rare disease needs financial assistanceThe Rakyat Post

all 3 news articles »
Wednesday, October 22, 2014

The Rakyat Post

Girl with rare disease needs financial assistance
The Rakyat Post
daughter who is suffering from a rare neurological disease. Nor Aina, the fourth of six siblings, was diagnosed with Acute Necrotizing Encephalopathy Childhood (ANEC), on April 9. A. Amir Abdullah, 44, said his daughter was then warded at the Sultanah ...
Parents seek public donation to help daughter with rare diseaseAstro Awani

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Wednesday, October 22, 2014

Astro Awani

Parents seek public donation to help daughter with rare disease
Astro Awani
JITRA: Parents of eight-year-old Nor Aina Syazwana Husna in Kampung Tanjong Kapur here are seeking public donation for their bedridden daughter who is suffering from a rare neurological disease. Nor Aina, the fourth of six siblings, was diagnosed with ...
Girl with rare disease needs financial assistanceThe Rakyat Post

all 1 news articles »
Wednesday, October 22, 2014

Gwinnettdailypost.com

Ailing former nurse starts charity for awareness of rare disease | VIDEO
Gwinnettdailypost.com
Beth Nguyen sits for a portrait at her home on Thursday in Lawrenceville. Nguyen has a rare disease called syringomyelia that damages the spinal cord due to a fluid-filled cyst that forms on the cord. Because of the damage to her spinal cord, typical ...

Wednesday, October 22, 2014

Gwinnettdailypost.com

Ailing former nurse starts charity for awareness of rare disease
Gwinnettdailypost.com
Beth Nguyen sits for a portrait at her home on Thursday in Lawrenceville. Nguyen has a rare disease called syringomyelia that damages the spinal cord due to a fluid-filled cyst that forms on the cord. Because of the damage to her spinal cord, typical ...

and more »