Latest News

Friday, September 19, 2014

Gulf Daily News

Rare disease teen may lose legs
Gulf Daily News
A TEENAGER, who suffers from a rare disease that affects the lymphatic system, could lose both his legs. Doctors in Bahrain believe the best course of action is to amputate Bahraini Muhammad Asad Yamin's legs, but his parents want to take him to the ...

Friday, September 19, 2014

St. Augustine toddler continues battle with rare disease
St. Augustine Record
Megan and Daniel Outley's 2-year-old son Connor has been receiving treatment at Duke Children's Hospital in Durham, N.C., for severe combined immunodeficiency, also known as the bubble boy disease. The Outleys left St. Augustine for Duke in ...

Friday, September 19, 2014

Teen Swims for His Family Battling a Rare Disease
TWC News
Two teens are taking their love of swimming not to the local pool, but to the Boston Harbor. They're swimming across the span to help one of the boy's families in battling a deadly disease. Time Warner Cable News reporter Katie Eastman caught up with ...

and more »
Friday, September 19, 2014

Donegal Democrat

Raising awareness of a rare disease
Donegal Democrat
14th to 20th is Mitochondrial Disease Awareness Week, an attempt to raise awareness of this debilitating condition that can present at any age. Gina said it is difficult even for parents of a child with mitochondrial disease to talk to other parents of ...

Friday, September 19, 2014

Teen Swims for His Family Battling a Rare Disease
TWC News
Two teens are taking their love of swimming not to the local pool, but to the Boston Harbor. They're swimming across the span to help one of the boy's families in battling a deadly disease. Time Warner Cable News reporter Katie Eastman caught up with ...

and more »
Thursday, September 18, 2014

'Old and rare' disease rears its head again
Gay News Network
Dr Wilson said that 10 years ago syphilis was an “old and raredisease. “And it still is in the greater population. But it really has surged among gay men particularly those with HIV, which is a very large concern.” Social Researcher at UNSW ...

and more »
Thursday, September 18, 2014

School supports student with rare disease
WALB-TV
Lake Park Elementary has been working to educate students and raise awareness about the illness this week. Thursday, students and teachers wore green to show their support. "Curt was excited for today, everybody is wearing green. He thinks this is all ...

Thursday, September 18, 2014

Experts ask India to lead R&D in rare disease drugs
Deccan Chronicle
Hyderabad: Drug industry experts have called upon the Indian government to frame a policy on rare diseases to provide cure for 10 crore people suffering from them. Mr Ramaiah Muthyala, associate professor at University of Minnesota said, “The economic ...

Thursday, September 18, 2014

Stuff.co.nz

Brave battle with rare disease
Stuff.co.nz
Multiple tests followed over several years and it wasn't until Ataahua, now seven, suffered a stroke last year that she was diagnosed with a rare genetic disorder called mitochondrial disease. Mitochondria are the powerhouses of the cell, and create ...

and more »
Thursday, September 18, 2014

Stuff.co.nz

Brave battle with rare disease
Stuff.co.nz
Multiple tests followed over several years and it wasn't until Ataahua, now seven, suffered a stroke last year that she was diagnosed with a rare genetic disorder called mitochondrial disease. Mitochondria are the powerhouses of the cell, and create ...

and more »