There are many resources available on the internet. Here are a few that you might find helpful:
- Wikipedia: Rare Diseases
- National Organization for Rare Disorders
- About.com: Rare Diseases
- Office of Orphan Products Development (OOPD)
- Rare Diseases Clinical Research Network
The National institutes of Health database lets you look up diseases that have affected your friends and family:
If you would like to connect with other rare disease patients, www.RareShare.org is a unique social hub building communities for patients, families, and healthcare professionals affected by rare disorders.
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