The Rare Disease Champion Award
is given annually to a leader in college football who has realized his or her potential to make a positive and lasting impact on the rare disease community.
University: Stony Brook University
Vitals: Has been a college football coach for three decades, 14 of those as a head coach including eight at Stony Brook.
Rare Disease Connection: Through a former college teammate and Friends of Jaclyn Stony Brook head coach Chuck Priore was introduced to pediatric rare disease survivor Joe Feminella in 2009. The coach and his football program have formed a lasting relationship with the 14-year-old Feminella, who is a co-captain for the Seawolves.
Quick Hits: During his 14 years as a head coach, Priore has compiled a 91-49 record overall. In eight years at Stony Brook he developed the Seawolves into an FCS power by winning 52 of his 92 games including 19 victories in 2011 and 2012 combined… Was an offensive coordinator and strength coach at Union and University of Pennsylvania before getting his first job as a head coach at Trinity in 2000.