Ewing's Sarcoma

Education

Ewing's Sarcoma

Did you know that approximately one out of 10 Americans has a rare disease? With over 7,000 rare diseases collectively affecting more than 30 million Americans, the chances are pretty good that your connection to our cause is closer then you think.

Advocacy

Ewing's Sarcoma

The Need for Advocacy

Without treatment paid for by the National Institutes of Health, Lori’s son Nino might be unable to walk. Other than a small chest port under his shirt that allows doctors to administer his drugs, the nine-year-old’s body gives little indication of the rare and debilitating periodic fever syndrome (PFS) he suffers from. For now, Nino will continue receiving the off label drug that allows him to attend school every day and play sports.

Outreach

Ewing's Sarcoma

The Uplifting Athletes outreach program is essential to realize our vision of empowering people to take action against rare diseases and inspiring the medical community to find cures. The most visible component of our outreach program is our network of university chapters.

We believe that college football players are in a position to make a difference. University chapters are run by current football student-athletes to mobilize their fans and the media to make rare diseases more popular.

Research

Ewing's Sarcoma

Since each rare disease affects fewer than 200,000 Americans, they typically lack financial incentive to make and market new treatments. Increasing public interest in rare diseases and directly funding scientific research are two of the best ways we can improve this situation. Through our network of university chapters run by current college football players, Uplifting Athletes partners with leading charities for specific rare diseases and provide grants for the most promising research.