Privacy Policy

Effective Date: as of October 1, 2022


Uplifting Athletes recognizes the importance of protecting your privacy. This notice will explain what information we collect from you, the way we use this information, and the choices you can make regarding our use of your personal information.

Please also read our Terms and Conditions. By using the Uplifting Athletes websites, attending our events, or submitting information you agree to both of our Privacy Policy and our Terms of Use.

What We Collect and How We Use It

We may collect information such as your name, age, gender, personal or business address, occupation, e-mail address, user name, phone number, connection to rare disease, diagnosis, and credit card details that you provide both online and offline.

We may collect this information online, for example (but not limited), when you:

  • Make a donation or pledge online
  • Register for an event, such as an Uplifting Experience
  • Participate in our social media community
  • Purchase Uplifting Athletes branded apparel
  • Request a newsletter and/or digital communications
  • Submit an inquiry through one of our forms
  • Enter a contest, giveaway, or sweepstake
  • Submit a story

We may receive information about you from our third party partners’ websites. We also obtain this information offline, through registration forms and postal appeals when you:

  • Donate
  • Take part in any of our events
  • Visit our booth at a third-party conference

Uplifting Athletes may also receive names and addresses of potential donors from other companies and organizations.

We may obtain additional information and also update information we may have concerning you, as a result of your subsequent involvement with Uplifting Athletes as a donor, volunteer, participant in our events, or other engagement in our mission.

We use this information to register you to participate in our events, to respond to specific questions you may have, to honor opt-in requests for marketing materials or communications, to process payments and donations made online and also to contact you about new opportunities and initiatives.

Sharing Your Personal Information

Personal information we collect is maintained in our national database and limited data is available to our school chapters. Uplifting Athletes does not share your personal information or e-mail address with third parties outside the organization besides our chapter schools without your consent, except as described in this privacy policy below.

Legal and Business Disclosures

Uplifting Athletes, when required, may disclose personal information in response to subpoenas, court orders or other legal process, to law enforcement agencies for the purpose of investigating any activities that we believe, in good faith, to be unlawful, to service providers who work on our behalf and adhere to our privacy policies, and to any successor in interest as a result of a merger or reorganization or by operation of law.

Social Networking Sites

Please be aware that personal information that you may disclose on our social networking sites may be visible to anyone visiting those sites and may be collected and used by third parties.

Uplifting Athletes advises users that posts uploaded to Share Your Story are accessible to the public and visible to anyone who visits the site. By posting information on this site, you may receive unsolicited messages from third parties unrelated to the Uplifting Athletes. The Uplifting Athletes monitors its websites, but it remains the responsibility of the site visitor to use his/her best judgment in choosing the information he/she will post. Any messages or stories shared on this site may be used in other Uplifting Athletes marketing activities. Please also see our Terms and Conditions regarding the information you share on this website.


By entering our contests and sweepstakes you may grant us permission to publish your first name and state of residence and use your name and/or photograph for advertising/publicity purposes. Please read the official rules of the contest or sweepstakes for more information.

Information from Cookies

Uplifting Athletes uses cookies — small text files that a website can place in a visitor’s browser cache — and similar technology (such as Java Script and Web beacons or transparent gifs) to collect data that include your Internet protocol (IP) address, the type of browser and operating system you use, the date and time of your visit, the state in which you are located if in the United States, and the amount of any donation you make. We also collect your sign-up information, including the user name that you create when you register for events. We do not save passwords in the cookies.

We use cookies to recognize repeat visitors and use of our sites. By using cookies, we are able to deliver content that is more relevant to you in light of your interests and location and obtain information that helps us improve the design and functionality of our websites.

Credit Card Transactions

Payment information, such as credit card number and expiration date, is submitted to us online when you make a donation, sponsor a participant in any of our events, or purchase from our online store.
The Uplifting Athletes uses third party intermediaries to process your online donations and payments. Your credit card information is transmitted over a secure connection between your computer and our server using Secure Socket Layer (SSL) encryption and is encrypted when submitted to the credit card processor.

This credit card information is never shared with third parties other than the processor, a consultant employed by the Uplifting Athletes to help identify illegal credit card activity at our websites, and, in the case of the online store, the store fulfillment center that is responsible for processing your order. Your credit card information may be stored for verification purposes, for processing recurring donations that you have authorized and for processing returns or back orders.

Our Data Security Practices

The Uplifting Athletes implements physical, electronic, and managerial procedures to ensure that your personal information is protected at all times, including SSL (Secure Socket Layer) encryption, firewalls, and password protection. Our servers are housed in an off-site secured co-location facility. All employees are reminded of the importance of protecting the privacy of our donors, website, and mobile application users and of adhering to our Privacy Policy.

Children’s Privacy

We may collect personal information such as your child’s name, e-mail address, and postal address in order to register them in Uplifting Athletes activities. Your child’s personal information is subject to all of the terms of this Privacy Policy.

Your Privacy Rights Under California Law

California’s “Shine the Light” law regulates the sharing of personal information by a company for direct marketing purposes by requiring a company to notify a consumer of its sharing practices or by providing the consumer the opportunity to opt out of having their personal information shared with a third party free of charge.

Your Right to Your Information

If you have any questions concerning our Privacy Policy, wish to correct your personal information, wish to request deletion of your data, or request limiting the data Uplifting Athletes may share with a third party entity, you may send your request through the request form at the Contact Us page.

If you have subscribed to any Uplifting Athletes digital communications, you may unsubscribe by following the instructions on the footer of each of our emails.

Changes to our Privacy Policy

Uplifting Athletes reserves the right to change its privacy policies at any time. Updates to the privacy policy will be immediately made available through our site on the Privacy Policy page.