Rare Disease Awareness

Rare Disease Champion

Rare Disease Champion

 

The Uplifting Athletes Rare Disease Champion is given annually to a leader in college football who has realized his or her potential to make a positive and lasting impact on the rare disease community.

An awareness campaign powered by Uplifting Athletes, the Rare Disease Champion is determined by college football fans and the rare disease community through online voting. The award is presented to the winner at the Maxwell Football Club Awards Gala in Atlantic City, NJ, and celebrated at Uplifting Athletes’ Young Investigator Draft in Philadelphia, PA.

Sculpted by world-renowned artist Brian Hanlon, the Rare Disease Champion trophy is in the likeness of Mark Herzlich, the former Boston College and current New York Giants linebacker who provided the inspiration for the award after overcoming a life-threatening battle with the rare disease Ewing’s sarcoma in 2009.

Learn more here.

Rare Disease Awareness Games

Rare Disease Awareness Games

Every year during spring scrimmages and regular season games, university chapters plan numerous activities to inspire the rare disease community with hope through the power of sport. Some of our favorite examples include Uplifting Athletes branded footballs, helmet stickers, jersey patches, wristbands, and promotional videos!

 

Uplifting Athletes branded football

News

Posted on Monday September 09, 2019
Maryland is off to a 2-0 start, and the Terrapins offense is setting plenty of school records in the process. The opening victory over Howard, where the Terps scored 79 points, was no surprise at all. But following that up with 63 against previously ranked Syracuse turned plenty of heads in Week 2 of the […] Continue Reading »
Posted on Thursday September 05, 2019
Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter for our Beyond the Trophy series. Name: Bobby Walker College: University of Illinois Height, weight, class, position: 6-4, 240-pound, senior, tight end High School: Loyola Academy in Golf, Ill. About Bobby: A former walk-on who […] Continue Reading »
Posted on Tuesday September 03, 2019
Terrell Johnson hauled in a 35-yard touchdown pass with 77 seconds remaining and Trevor Thompson nailed the extra point to help Saint Francis win its season opener in come-from-behind fashion on the road at Lehigh by a point. The Red Flash victory wasn’t without plenty of late drama, though. Lehigh moved the ball down the […] Continue Reading »
Posted on Thursday August 29, 2019
Each week during the college football season we will feature a player who is an officer for an Uplifting Athletes Chapter for our Beyond the Trophy series. Name: Jorge Portorreal College: Lehigh University Height, weight, class, position: 5-11, 190, junior, wide receiver High School: St. Peter’s Prep in Union, N.J. About Jorge: After two seasons with […] Continue Reading »
Posted on Monday August 26, 2019
For more than five years, Dr. David Fajgenbaum has been a friend, mentor, advisor, inspiration and partner to Uplifting Athletes and the Rare Disease Community. Dr. Fajgenbaum was a recipient of one of the five research grants awarded at the inaugural Uplifting Athletes Young Investigator Draft in 2018. The research organization he helped launch, Castleman […] Continue Reading »
Posted on Friday August 09, 2019
Over the course of five months, earlier this year, a record 21 members of the Uplifting Athletes’ chapter network held our signature event, Lift For Life, to raise awareness and funds in support of the Rare Disease Community. Lift For Life 2019 was conducted in two phases. It started in Philadelphia with Penn on February […] Continue Reading »
Posted on Wednesday August 07, 2019
Uplifting Athletes is excited to welcome Trey Klock to our team in the role of Chapter Success Manager. In 2015, as a college football student-athlete, Trey founded the Georgia Tech Chapter of Uplifting Athletes and, when he transferred to Northwestern, he joined the leadership team of the Wildcats’ Chapter. His passion for the Rare Disease […] Continue Reading »
Posted on Thursday August 01, 2019
Phase 2 of Uplifting Athletes’ network of chapters Lift For Life season was culminated with Rare Road Trip 2019. In the spring, seven of our chapters held these signature events to support our mission to inspire the Rare Disease Community with hope through the power of sport. Those seven schools set the table for the […] Continue Reading »
Posted on Wednesday July 31, 2019
This story about Uplifting Athletes Executive Director Rob Long was written by Neil Geoghegan and published on July 19, 2019 on papreplive.com. We are re-publishing this story as it was originally presented and with full permission. As birthdays go, Rob Long’s 22nd was certainly memorable. But unlike all of the others, it was filled with […] Continue Reading »
Posted on Thursday July 11, 2019
The Illinois Chapter of Uplifting Athletes will hold its annual Lift For Life to support the Rare Disease Community on Wednesday, July 24th. Lift For Life is the signature fundraising event for the Illinois Chapter of Uplifting Athletes. Illinois is a part of Uplifting Athletes’ nationwide network of chapters led by college football student-athletes. Each […] Continue Reading »