by Brett Brackett | Jan 17, 2025
Dr. Allisandra Rha is a molecular biologist at the Children’s Hospital of Orange County, dedicated to advancing research and therapeutic development for lysosomal storage diseases. Dr. Rha received her PhD from Emory University, where she defined pivotal interactions...
by Brett Brackett | Jan 17, 2025
Dr. Saumel Ahmadi, MD, PhD, is a Pediatric Neurologist and Clinician-Scientist pursuing patient inspired and patient focused basic and translational research. His focus is precision medicine for rare neurogenetic conditions like Wolfram syndrome. Currently a...
by Brett Brackett | Jan 17, 2025
Dr. Reed is a pediatric hematologist at Dana-Farber Cancer Institute/Boston Children’s Hospital, where she recently completed her fellowship training. She received her MD from the University of Pennsylvania and completed internal medicine/pediatrics residency at...
by Brett Brackett | Sep 10, 2024
by Brett Brackett | Jan 25, 2024
In the world of rare diseases, where shadows often loom large, champions rise to illuminate a path forward. Certain individuals are beacons of hope, offering unwavering support and a fighting spirit that inspires others facing seemingly insurmountable challenges. One...
